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Visit Tom W.-670850's column >>

TOM W.-670850

Knowledge seeker
Articles Posted: 26  Links Seeded: 20
Member Since: 10/2008  Last Seen: 9/21/2011

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Mom update September 2010

Mon Sep 13, 2010 4:37 PM EDT
health, mom, dementia, alzhiemers, memory-loss, support-groups
By Tom W.-670850
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Here's an update on my mom form this article: http://tommy38.newsvine.com/_news/2010/02/25/3950460-i-need-help-in-dealing-with-my-mothers-dementia

I know that it has been a while since I posted to the group but I have been busy, some days I look after my mom while my dad watches my niece and nephew (his grand kids). I have more free time now because my nephew is in grade school all day and my niece goes to kinder garden in the afternoons. This means that dad only has to watch my niece until 11:30 and then the rest of the day is free.

I haven't been around much because my parents no longer have Internet access and it was to much hassle to drag the laptop around while I traveled out to their condo, it has been nice to get away from all the negativity here lately and spend some quality time with my mom, just her and I, one on one.

One thing that I noticed was that when spending time with just the two of us, my mom seemed to be less prone to repeating questions as she is when all the kids are around. I think it is easier for her to focus on a single interaction, rather then having so much input that she is over whelmed. We spent some time going thru old pictures and separating them into piles for the various family members, and I let her tell me about what the pictures were about, rather then asking her if she remembered a picture. The visual aids of the pictures appears to help her memory. I have also noticed that after we are done she will talk about things we were not looking at in the pictures that happened years ago. I do not know if the pictures help her make connections or what, but it seems to me that on days that we do this activity she is more engaged with her surroundings then on days when she is around the grand kids and trying to pay attention to them (you know how the youngsters are, they want you to "watch me" do this and that!)

I have also been able to just spend quiet time with mom and enjoy that. At times she will repeat questions over and over and I usually answer her again the first few times, then if she continues I ask her about herself, like if she has done anything fun lately, and that seems to break the repetition of questions as her train of thought changes.

Medically they are thinking of doing some ct scans to see if she has any changes in her brain size related to her dementia. Unfortunately (or maybe fortunately, who knows!) they can't do the PET scans as she has had aneurysms clipped. They would like to do these since my aunt (her oldest sister) has advanced Alzheimer's. I guess it really doesn't matter since there is really no effective treatment for the disease, what do we gain form a diagnosis that has no treatment.

All in all I have found myself looking forward to spending time with her, rather then avoiding it, which is a big change from when I wrote the first article. My favorite thing is that she still remembers that I am her baby boy! I do have a younger sister, but for some reason my mom has started to refer to me this way in the last few years, maybe she is trying to keep me and my two older brothers distinct in her mind? What ever the reason it is my favorite thing to hear because I know that she still remembers who I am. I am trying to prepare myself if that should change, but I try to live in the moment and enjoy the time we have now rather then worrying about what may be!

Thanks to all who have helped me deal with this issue and for those who have joined the group! If you know anyone on the Vine or elsewhere who you think would benefit for the group, send them along and will get them in!

Meanwhile good health to you all and much happiness for you and yours!

Tommy

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  • Groups: Alzheimers/Dementia Support, Caregivers, Fibromyalgia friends, HealthVine, Newsvine Community, Seeders and Posters w/ Manners
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  • Public Discussion (13)
Tom W.-670850

Hope you all are well, my apologies for not being around as of late, but duty (and love) calls!

It sure is a big relief for my parents to get a big break from their baby sitting duties! I know they have enjoyed the time and will continue to do so but now they can do more and have more free time to enjoy their retirement!

Let me know how you all are doing!

Also please invite anyone to the group who you think may benefit!

  • 2 votes
Reply#1 - Mon Sep 13, 2010 4:41 PM EDT
bitemore

I am glad you have been able to spend some quality time with your Mom while she can still enjoy it. Every moment is precious, as I am sure you know.

  • 2 votes
Reply#2 - Mon Sep 13, 2010 5:11 PM EDT
Physicist-retired

Tom,

We spent some time going thru old pictures and separating them into piles for the various family members, and I let her tell me about what the pictures were about, rather then asking her if she remembered a picture. The visual aids of the pictures appears to help her memory. I have also noticed that after we are done she will talk about things we were not looking at in the pictures that happened years ago.

This is exactly the experience I had with my uncle, who suffered from Parkinson's for nearly 25 years.

At the point before he completely withdrew, he was obsessed with old photos. We spent months pouring over pictures from his youth, WW II, his first house, family, etc. It gave him great pleasure.

I think you've really hit on something here - old family photos seem to be very comforting to people suffering from dementia, Alzheimer's, or Parkinson's.

I happy for your mother that you have the time to do this with her. I know that it was a great comfort for my uncle - and for me.

  • 2 votes
#2.1 - Mon Sep 13, 2010 5:51 PM EDT
Tom W.-670850

Many times it is the small things that we can enjoy the most! Plus they have been meaning to do this along time so they can get rid of things after they moved from the house to a condo, but haven't had the time!

It would be an interesting thing to study, and see if there are any affects inside the brain, but I'll leave that to the scientists!

  • 2 votes
#2.2 - Mon Sep 13, 2010 6:27 PM EDT
Reply
Jerseygirl1978

Tom: Glad to hear from you and thank you for sharing. Very moving. Wishing you (and mom!) all the best... :)

  • 1 vote
Reply#3 - Mon Sep 13, 2010 8:02 PM EDT
Tom W.-670850

Back at ya, I am so glad my Dad is still able to get around and help take care of his lovely wife, my mother, they just celebrated 49 years this Sept, and Mom has been "hinting" that she wants a big party next year! This is another thing I have been able to do while she naps is to go through and get friends addresses and send out some save the day cards for next year! My brothers and my sister are going in on a catered buffet at one of their favorite restaurants. I'll write all about that one next year!

  • 1 vote
#3.1 - Mon Sep 13, 2010 10:04 PM EDT
Jerseygirl1978

Tom: That'll be some party! Sounds like it will be fun. Wonderful to hear that your mother and father have been married so long. That must be a wonderful thing to witness. :)

  • 1 vote
#3.2 - Tue Sep 14, 2010 1:23 AM EDT
Tom W.-670850

It'll be great, we did there 25th Anniversary at our house where we grew up, I have the Microwave we gave them for it, it is the size of an older TV :-)

I only remember them fighting (with words only!) one time in all my life. They are both great people who taught me a lot about love, forgiveness, and understanding!

  • 3 votes
#3.3 - Wed Sep 15, 2010 12:09 PM EDT
Reply
azsky13

Glad to hear you are spending quality time with your mother. It is important for both of you. It is so hard to see a parent decline. Sounds like you are making the best of the situation.

  • 1 vote
Reply#4 - Wed Sep 15, 2010 12:35 AM EDT
calmandgentle

Tom, one never knows what sound ,sight ,smell,etc will trigger a memory. Our brains are like a computer, somethings get "deleted" and make room for other things. Have a great Party! Do they like The Big Bands. Maybe they still have records? Good luck!!

Remember the book and movie, The Notebook? It either was a true story or based on one.

  • 1 vote
Reply#5 - Wed Sep 15, 2010 2:04 AM EDT
Tom W.-670850

I am not familiar with that movie. Who was in it or what year was it?

The band will be the least important thing, having friends around will be the best part, Most of their crowd is past the dancing stage and it will probably be easier to talk with out a band. I know my sister is working on finding out what song they danced there forst dance to. We have to be sneaky because we want some things to be a surprise!

  • 1 vote
#5.1 - Wed Sep 15, 2010 12:12 PM EDT
Jerseygirl1978

Tom: You must see The Notebook! It is in my top ten. It's a great movie. Rachel McAdams and Ryan Goseling are fantastic and James Garner and Gena Rowlands are great also! It is based on the novel from Nicholas Sparks (also great). It is a fictional story, but it was loosely based on the grandparents of Spark's wife. You need to see it. :)

  • 2 votes
#5.2 - Fri Sep 17, 2010 7:54 PM EDT
Reply
calmandgentle

Tom, I had to look that up!! The Notebook movie came out in 2004. Ryan Gosling and Rachel McAdams. Haven't seen it in a long time. The older couple are well known . James Garner and Gena Rowlands. The younger actors played them as they were younger.

Their 1st song will be cool!! Have you asked them. Pretend you are looking something up for yourself and ask them as a "by the way....."! How about records playing quietly in the background? Or CDs. Most music stores have them in sets. Book stores, too. Don't know if I can say names but ask them. They should be able to order them for you if they don't have them right there. If they can't dance, they can sing along. And maybe shed a tear or two!! That'll be a good thing ,too!

  • 2 votes
Reply#6 - Thu Sep 16, 2010 6:34 PM EDT
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